CMTA Staff

…than 50 active research projects, including sponsored research grants with academic labs and pre-clinical testing studies with biotech/pharma Alliance Partners. Katherine also curates CMTA’s Patients as Partners in Research initiative,…

CMT-SORD: Share Your Story

…opportunities to render more effective healthcare. Having these conversations is especially important for CMT. What is This CMT Research Opportunity? This CMT research opportunity is our chance to understand how…

Data Breach Update

…CEO of CMTA, formed the CMT Research Foundation (CMTRF). Sometime thereafter, CMT Research Foundation began using portions of the database to solicit donations for CMT Research Foundation. The Charcot-Marie-Tooth Association…

Sorbitol Dehydrogenase (SORD) Deficiency

What is CMT-SORD? CMT-SORD, also known as Sorbitol Dehydrogenase Deficiency, is a recently discovered, unique type of Charcot-Marie-Tooth disease (CMT). Identified in May 2020 with funding from CMTA, this type…

CMTA Board of Directors

…managers, doctors, lawyers, or public servants, they have the expertise to oversee the organization’s operations and formulate its strategy for funding research and finding a cure. As individuals, whether they…