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Data Breach Update
…CEO of CMTA, formed the CMT Research Foundation (CMTRF). Sometime thereafter, CMT Research Foundation began using portions of the database to solicit donations for CMT Research Foundation. The Charcot-Marie-Tooth Association…
Sorbitol Dehydrogenase (SORD) Deficiency
What is CMT-SORD? CMT-SORD, also known as Sorbitol Dehydrogenase Deficiency, is a recently discovered, unique type of Charcot-Marie-Tooth disease (CMT). Identified in May 2020 with funding from CMTA, this type…
CMTA Invests $423K to Accelerate CMT Diagnostics and Gene Discovery
…in Research Today Not yet registered with CMTA’s Patients as Partners in Research? Sign up today to be among the first to learn about new CMT research opportunities for which…
CMTA Patient & Research Summit
09/05/2025 – 09/07/2025 @ All Day – The 2025 CMTA Patient & Research Summit will be held on Friday, September 5th – Sunday, September 7th at the Embassy Suites at Indianapolis Airport in Plainfield, Indiana. The CMTA Summit offers life-improving presentations on living well with CMT and will provide a comprehensive update on CMTA’s Strategy to Accelerate Research (STAR) programs and initiatives, […]
Winter 2024 CMTA Report: From Research to Reality
…CMTA-INC Strategic Alliance, a global partnership advancing research and patient care. Stories of community impact, such as the Paulsen family’s dedication to CMT4C research, demonstrate the power of collective action….
Research Project: CMT Biomarkers and Outcome Measures
Dear Patients and Families affected by Charcot Marie Tooth Disease Type 2A, 2F, 1B and X, We wanted to reach out to you about your possible participation in a research…
The Spring 2021 CMTA Report – Special Research Edition
DOWNLOAD AS PDF VIEW IN BROWSER The Special Research Edition of the Spring 2021 CMTA Report is available now and full of information for you. Inside, we bring you coverage…
SORD Research
SORD Research Every year more types of CMT are identified by STAR researchers, but there are many left to discover. The CMTA is helping to identify the genes that cause…
Research Survey About Impacts of COVID‑19
Rare disease patients and caregivers: How are you being impacted by the novel coronavirus pandemic? Please complete a 20-minute online research survey from home to share your experiences. This study…
Research Triangle Area, NC CMTA Branch
The Research Triangle Area, NC CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring…