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CMTA Lunch & Learn: CMT 1A-focused Patients as Partners in Research Town Hall
09/20/2023 @ 12:00 pm – 1:00 pm – Please join us on September 20th at 12:00 p.m. Eastern Time for our next Lunch & Learn education meeting when we will welcome guest speakers John Svaren and Gilles Bouchard. Dr. Svaren and Gilles will be sharing a CMT 1A STAR research update to include the following: the latest information about DTx-1252, the potential life-changing […]
CMTA-STAR Research for Axonal Forms of CMT
…to the market in the near future. The CMTA’s funding and operations focus is on translational research that will lead as directly as possible to therapeutic treatments for CMT. Axonal…
A New Therapeutic Strategy for CMT2D
…for nerve cell survival. Through experiments that identified the cause of this transport disruption, the scientists were able to develop a treatment strategy that improves this critical transportation system in…
Repurposing Drugs for CMT1A: An Encouraging Approach
…nerve cells will alleviate CMT symptoms and slow disease progression. This innovative approach to CMT1A treatment involves repurposing an existing FDA-approved drug, which could expedite the availability of a new…
Help CMTA Develop Clinical Trials in a Dish
…that are affected by CMT disease. If we can study these cells, we can increase our understanding of CMT and test the effectiveness of new treatments more quickly. Stem cells…
CMTA Partners with Actio Bio on CMT2C Focus Group
…future treatment goals. Moderated by CMTA, patient participants were given a platform to directly share their experiences in a manner that will contribute towards new advancements in research and the…
CMT2F Study Achieves Recruitment Goal, Expands to Include Additional Participants
…every breakthrough, clinical study, and scientific discovery. Your support accelerates research, drives treatment development, and brings hope to everyone with CMT. Register With Patients as Partners in Research Today Not…
The 2020 Summer CMTA Report
…CMT Patients Turn to Telemedicine For Treatment During Pandemic Six Centers of Excellence Surveyed Connecting Our Community Online Taking the Toronto Branch Online Intubation and Mechanical Ventilation Calling All Dreamers!…
Inside Innovation | Education Event & Lab Tour
04/09/2025 @ 12:30 pm – 4:30 pm – Join us for a special event with CMTA-STAR Alliance Partner, Actio Biosciences on Wednesday, April 9 from 12:30 p.m. – 4:30 p.m. Pacific Time. CMT community members are invited to spend the afternoon learning about the world-class research Actio Biosciences is doing in CMT 2C/TRPV4+, and attendees will also get to tour Actio Biosciences research […]
Encouraging News in CMT Research from CMTA-STAR Alliance Partner Alesta Therapeutics
…working on a treatment to tackle the nerve damage caused by tRNA synthetase gene mutations in certain types of CMT. According to the company, their therapy, ALE2, works by shutting…