CMTA Lunch & Learn: CMT 1A-focused Patients as Partners in Research Town Hall

09/20/2023 @ 12:00 pm – 1:00 pm – Please join us on September 20th at 12:00 p.m. Eastern Time for our next Lunch & Learn education meeting when we will welcome guest speakers John Svaren and Gilles Bouchard. Dr. Svaren and Gilles will be sharing a CMT 1A STAR research update to include the following: the latest information about DTx-1252, the potential life-changing […]

The Fall 2020 CMTA Report

…CMT Join Tribe of the Funky Feet Online CMT1A, CMT1B, CMT4B Projects Approved CMT1A Research Agenda Fuller than Ever 1A Timeline: CMTA Roadmap to Success Consensus Statement on Surgical Treatment…

The CMT&ME Study: What It’s Like to Live with CMT

…how treatment can improve patient quality of life and slow CMT progression. The study collects data directly from patients using a digital app, CMT&Me, which collects real-world data using “bring…

CMTA Staff

Dr. Suzanne (Sue) Bruhn | she/her Chief Executive Officer Sue has dedicated her career to patient-focused drug development for the treatment of rare diseases. She’s had a long career in…

CMTA_2020_Annual_Report

…projects, it is important to keep in mind that we have a clear pathway for treatment of CMT2 type neuropathies that affect motor neurons. The recently approved AAV treatment for…

2021_Summer_CMTA_Report

www.cmtausa.org SUMMER 2021 CMTATHE REPORT Food Additive Treatment for 1X Managing CMT Symptoms with Nutrition An Old Man’s Journey with CMT7 14 21> > > “ N O M A…

Conference Recordings

…possible treatment approaches for the most common types of CMT. Genetic counselor Tanya Bardakjian shares information on the genetic mutations associated with CMT, genetic testing, inheritance patterns, and much more….

Terms & Conditions

…or treatment. CMTA does not guarantee the accuracy, adequacy or completeness of any information and is not responsible for any errors or omissions or for the results obtained from the…