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Seattle Focus Group with Acceleron Pharma
…the work of our Strategy to Accelerate Research (STAR) and showcase ways the patient community can participate in furthering the development of treatments, and ultimately a cure, for CMT. As…
NJ/NYC Focus Group with Acceleron Pharma
…furthering the development of treatments, and ultimately a cure, for CMT. One of the first CMTA Patients as Partners in Research projects was a focus group coordinated in partnership with…
2021_Summer_ CMTA_Report
www.cmtausa.org SUMMER 2021 CMTATHE REPORT Food Additive Treatment for 1X Managing CMT Symptoms with Nutrition An Old Man’s Journey with CMT7 14 21> > > “ N O M A…
The CMTA Is Accelerating Research Through Gene Therapy
…is to transform it into effective treatments for people living with CMT. Given the increased feasibility and applicability of gene therapy to CMT, the CMTA hosted a Gene Therapy Workshop…
Be an INNERVATOR! Join the CMTA Monthly Giving Program
…CMTA INNERVATORS are action-oriented game-changers. They sustain CMTA with monthly gifts throughout the year. Life-changing initiatives like Camp Footprint, treatment-focused research, and invaluable educational initiatives depend on steady, reliable support…
2018_Winter_CMTA_Report
…consulted for treatment. Neuropathic and musculoskeletal pain are different in nature, and different strategies can be used to manage them. Cramps can be persistent, but, unfortunately, evidence is lacking on…
Awareness Month: A STAR Researcher’s Perspective
“What Awareness Month Means to Me” An Interview with CMTA STAR Researcher Dr. Kleopa What led you in your professional life to work on finding treatments for CMT? What really…
Fall_2020_CMTA_Report
…an FDA approved drug and similar compounds—could lead to an accelerated treatment for patients. CMT1A Project: The board awarded Dr. Luigi Puglielli, University of Wisconsin Madison, $89,889 to explore a…
Glenn Pfeffer_Tendon Transfer Article_2020
…Tendon Transfers for Treatment of Foot Drop in Charcot-Marie-Tooth Disease: A Biomechanical Evaluation Glenn B. Pfeffer, MD1*, Max Michalski, MD1* , Trevor Nelson, BS1, Tonya W. An, MD, MA1 ,…
CMTA _2015_Annual_Report
…CMTA is aggressively fighting to find a pharmaceutical treatment, and, ultimately, a cure for all types of CMT. We currently have protocols for developing treatments for the types of CMT…