Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
Awareness Month: A STAR Researcher’s Perspective
“What Awareness Month Means to Me” An Interview with CMTA STAR Researcher Dr. Kleopa What led you in your professional life to work on finding treatments for CMT? What really…
How to Decide If Foot Surgery Is Right for You
Parents, There is Something You Can Do: Donate to Research!
…a drug treatment. Thanks to the CMTA medical advisors, a step-by-step plan was put together that led to the ongoing, coordinated work with the NIH and the current successes to…
The Art of Letting Go
…a cane and fend for himself. “I won’t be here forever,” she repeatedly told him. Harsh though her treatment of the young Ray Charles seemed, their story is filled with…
Seattle Focus Group with Acceleron Pharma
…the work of our Strategy to Accelerate Research (STAR) and showcase ways the patient community can participate in furthering the development of treatments, and ultimately a cure, for CMT. As…
NJ/NYC Focus Group with Acceleron Pharma
…furthering the development of treatments, and ultimately a cure, for CMT. One of the first CMTA Patients as Partners in Research projects was a focus group coordinated in partnership with…
2021_Summer_ CMTA_Report
Genetics
…in a CLIA-certified lab before the information could be used for clinical purposes (such as treatment or clinical trials). Instead, get tested at a genetic testing company because they do…
The CMTA Is Accelerating Research Through Gene Therapy
…is to transform it into effective treatments for people living with CMT. Given the increased feasibility and applicability of gene therapy to CMT, the CMTA hosted a Gene Therapy Workshop…
Be an INNERVATOR! Join the CMTA Monthly Giving Program
…Life-changing initiatives like Camp Footprint, treatment-focused research, and invaluable educational initiatives depend on steady, reliable support from committed and reliable donors. If you want to make a lasting difference in…