Page 2 - 2021 Summer CMTA Report

PONYING UP
FOR THE CMTA:
BOARD MEMBER
DAVID COLDIRON
HOSTS A KENTUCKY
DERBY PARTY

PAGE 22

SUMMER 2021
CONTENTS

RESEARCH
CMTA AWARDS ZÜCHNER $300,000 FOR GENE DISCOVERY WORK ......................7
CMTA AWARDS $100,000 TO EXPLORE POTENTIAL 1X TREATMENT .......................7
CMTA-STAR AWARDS $1.1 MILLION IN GRANTS FOR CLINICAL TRIAL PREP .......... 8
PXT3003 TRIAL SHOWS SUSTAINED BENEFITS FOR CMT1A PATIENTS ................. 8
PARTICIPANTS SOUGHT FOR BIOMARKER STUDY .........................................................9
COMMUNITY
WHY SHE GAVE: JEAN NIBBE .................................................................................................19
AN OLD MAN’S JOURNEY WITH CMT ............................................................................... 20
VIRTUAL BRANCH NOTES ......................................................................................................23
LIVING WITH CMT
MANAGING CMT SYMPTOMS WITH NUTRITION .............................................................14
OCCUPATIONAL THERAPY FOR CMT HANDS .................................................................16
HEATED MASSAGER WARMS COLD LEGS .........................................................................18
ASK DAVID ....................................................................................................................................24
FUNDRAISING
CELEBRATING STEVE (AND HIS TWO DECADES OF FUNDRAISING) ....................... 4
FIRST ANNUAL COLDIRON DERBY FUNDRAISER NETS $30,823 ............................22
YOUTH
IT’S TIME TO DANCE 4 CMT! ...................................................................................................13

THE CMTA REPORT | SUMMER 2021
Marcia Semmes, Executive Editor
Karlyn Rosen Aires, Designer
Dana Schwertfeger, Contributing Editor

The CMTA Report is published by the Charcot-Marie-Tooth Association, a registered non-profit
501(C)(3) health organization. © 2021, The CMTA. All rights reserved under International and
Charcot-Marie-Tooth Association Pan American Copyright conventions. No part of this newsletter may be reproduced in any form
or by any electronic or mechanical means, including information storage and retrieval systems,
P.O. Box 105 without permission in writing from the publisher. The opinions expressed in the newsletter
are not necessarily those of the Charcot-Marie-Tooth Association. The material is presented
Glenolden, PA 19036 for educational purposes only and is not meant to diagnose or prescribe. Always consult your
1-800-606-CMTA (2682) professional advisers as to how medical, legal or financial information in The CMTA Report
pertains to you. The CMTA assumes no liability for any information in The CMTA Report.
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