Page 11 - 2021 Spring CMTA Report - Special Research Edition

CELEBRATING STAR RESEARCH
The CMTA is Treatment-Driven
and Partner-Focused
Research and Strategic Partnerships

Dr. John Svaren, Chair
CMTA-STAR Scientific
Advisory Board

To advance CMT research, the CMTA:
• Invested over $17M since 2008 and expects to spend
$10M more to bring CMT drugs to market.
• Currently has over 50 active research projects with
top labs around the world.
• Has a STAR Scientific Advisory Board with 30 of the
best CMT scientists from around the world.
• Partners with more than 32 of the top
pharmaceutical, biotech and service companies.
• Actively works with the patient community in the
drug development process through the Patients as
Partners in Research program.
Support for 80,000 Patients and Families

Youth Council
established in
2019

The #1 trusted resource for information about
CMT, the CMTA provides support through:
• An Advisory Board with 25 expert contributors
• 41 CMTA Centers of Excellence (COE)
• 70+ CMTA Branches
• Biannual Patient Family Conferences
• Camp Footprint for children living with CMT
• The CMTA Report and other publications
• The CMTA Emotional Support Group
• CMTA Virtual programs and Webinars
• In-person and online community engagement
• National CMT Awareness Month
Active Fundraising and Stewardship
of Donations

CYCLE 4 CMT
successfully raised
over $1,400,000
from 2014-2020

The CMTA is community powered:
• In addition to annual campaigns, the CMTA community
supports our research and our programs through the
national Walk 4 CMT campaign, fundraisers held by
CMTA board members and grassroots events
organized by CMTA community members.
• The CMTA makes e™cient use of your donations -
more than 87 percent of every dollar goes directly
to support our mission.
• A 4-star rating by Charity Navigator two years in a row, P.O. Box 105 Glenolden, PA 19036
the highest rating a non-profit can receive, and a 100 1-800-606-2682
percent score for governance and transparency.
cmtausa.org
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