Page 35 - 2021 Spring CMTA Report - Special Research Edition

THE Charcot-marIe-tooth association

CMTA STAR ALLIANCE CMTA LEADERSHIP STAR ADVISORY BOARD
PARTNERS: Amy J. Gray, CEO John Svaren, PhD, SAB Chair
Acceleron Pharma University of Wisconsin
ARQ Genetics BOARD OF DIRECTORS Frank Baas, MD, PhD
Charles River Gilles Bouchard, Chairman University of Amsterdam,
Genzyme, A Sanofi Company Gary Gasper, Treasurer The Netherlands
HumanFirst Therapeutics LLC Herb Beron, Secretary Robert Burgess, PhD
The Jackson Laboratory
Horizon Discovery Dan Chamby
Ionis Pharmaceuticals David Coldiron Maurizio D’Antonio, PhD
San Raffaele Scientific Institute,
Inflectis BioScience Thomas W. Dubensky, Jr., PhD DIBIT, Milan, Italy
The Jackson Laboratory Laura Fava M. Laura Feltri, MD
NCATS (NIH) Alan Korowitz University at Buffalo
New York Stem Cell Foundation David Norcom Steven Gray, PhD
University of Texas
Passage Bio Steve O’Donnell Southwestern Medical Center
Psychogenics Chris Ouellette Scott Harper, PhD
Regency Pharmaceuticals Elizabeth Ouellette The Ohio State University
Renovo Neural, Inc. Kevin Sami School of Medicine
Phyllis Sanders, Esq. Kleopas Kleopa, MD
CMTA CORPORATE Steven Scherer, MD, PhD Cyprus Institute of Neurology &
PARTNERS: Genetics
Aetrex Worldwide, Inc. Michael Shy, MD Jun Li, MD, PhD
Allard, USA John Svaren, PhD Wayne State University
Balance Walking Special Advisor to the Board Rudolph Martini, PhD
University of Würzburg, Germany
Foot Solutions Bruce Chizen Klaus-Armin Nave, PhD
GeneDx Max Planck Institute for
Hanger Clinic ADVISORY BOARD Experimental Medicine
Kinetic Research Teresa Carroll, MS, PhD University of Göttingen, Germany
Turbomed Orthotics Gregory Carter, MD, MS Brian Popko, MD
Ken Cornell, CO University of Chicago
Bob DeRosa Mario Saporta, MD, PhD
CMTA STAFF University of Miami
Jonah Berger Katy Eichinger, PT, DPT, NCS
National Youth Programs Manager Ashraf Elsayegh, MD, FCCP Steven S. Scherer, MD, PhD
University of Pennsylvania
jonah@cmtausa.org Tim Estilow, OTR/L
Kim Magee Shawna Feely, MS, CGC Lawrence Wrabetz, MD
University at Buffalo
Director of Finance and
Administration Valery Hanks, OTR/L, C/NDT Stephan Züchner, MD, PhD
kim@cmtausa.org Sarah Kesty University of Miami
Leslie Nagel Kate Lair Mark Scheideler, PhD, TEB CHAIR
Marketing Coordinator HumanFirst Therapeutics LLC
leslie@cmtausa.or Bethany Noelle Meloche David Herrmann, MD
Laurel Richardson Tom Meloche University of Rochester
Director of Community Outreach David Misener, BSc (HK), CPO, MBA Tage Honore, PhD
laurel@cmtausa.org Elizabeth Misener, PhD, LMSW Aestus Therapeutics Inc.
Jeana Sweeney Christine Murray, MD Christopher Klein, MD
Director of Development Mayo Clinic, Rochester, Minnesota
jeana@cmtausa.org James Nussbaum, PT, PhD, SCS, EMT
Sabrina Paganoni, MD, PhD Lars J. Knutsen, PhD
Glenn Pfeffer, MD Discovery Pharma Consulting LL
Kenneth Raymond Claes Wahlestedt, MD, PhD
University of Miami
Clark Semmes Michael E. Shy, MD, CEB CHAIR
Carly Siskind, MS, CGC University of Iowa
Greg Stilwell, DPM Mary Reilly, MD, CEB CO-CHAIR
David Tannenbaum, LCSW National Hospital, London, England
Amy Warfield, PT, DPT Richard Finkel, MD
Nemour’s Children’s Hospital,
Evan Zeltsar Orlando, Florida
Davide Pareyson, MD
Besta Institute, Milan, Italy
Joshua Burns, PhD
University of Sydney, Australia
Michael McDermott, PhD,
CONSULTANT, University of
Rochester Medical Center
STAR IS THE BRIGHTEST BEACON OF HOPE IN

ACHIEVING OUR VISION OF A WORLD WITHOUT CMT.

Email the CMTA at info@cmtausa.org

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