Page 21 - Branch Leader Guide

Charcot-Marie-Tooth
Association

Facilitate Connections: The Spinning Wheel

We will send you information on awareness activities,
research news and patient advocacy efforts
throughout the year via email, including the
CMTA Quarterly Report. Please send this
information on to your members as we
send it to you. As a CMTA leader or co-
leader, you are the representative and voice
of the organization throughout the
community. In order for movement, action
and reciprocity to take place, the hub (the
CMTA) needs spokes (its leaders) to
communicate to the rim (CMTA members)
regularly and in a timely fashion. When we
send you news, share the love with your
members. Keep them updated, involved
and hopeful. They will appreciate your
efforts and communications, as will
everyone at the CMTA.

The Art of Fundraising
The CMTA is fortunate to have many generous donors and devoted members who
sincerely want to make a difference by supporting the CMTA’s mission and goals. Within
your branch and broader community, you will find generous donors, passionate
fundraisers and strong advocates for CMT awareness. This section of the Branch
Leader Guide will provide an overview of the different aspects of fundraising. Please
refer to the CMTA’s supplemental fundraising guide for detailed approaches and tools
for executing successful fundraisers (www.cmtausa.org/leader-toolbox)

Why Is Fundraising Important?
Simply stated, without funds, the CMTA and all of the benefits that it provides to our
participants would not exist. What does the CMTA offer the community and its
members?

• Articles, educational information and current research news
• The Ask-the-Expert Q & A forum
• Awareness Month activities
• Bi-annual Patient/Family Conferences
• Branch meetings
• A directory of CMT clinicians and Centers of Excellence

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