Page 7 - 2019 Fall CMTA Report
P. 7

WHY I GIVE:



                    Bruce Chizen







      THE CMTA is pleased to announce a second challenge grant
      to support the organization’s exciting new Type 2 CMT research
      strategy, which you can read more about on p. 4. Bruce Chizen,
      a special advisor to the Board of Directors, will match donations
      to CMT2 research on a one-to-one basis, up to $500,000.
      The former Adobe Systems CEO tells us why he thinks STAR
      research is such a good investment.

              hen Bruce Chizen        born and raised “before it was
              was diagnosed with      cool.” His mother was a home-
              CMT2 in 2016, the       maker and his father owned a
              CMTA was the first      store specializing in radios and
      Wplace he turned to for         TVs—“the tech of its time.” Bruce  the more money that can be raised  Bruce Chizen,
      help and information. His       thought he would be a teacher    to help with the research, the  special advior to
      internist put a name to the symp-  after studying health sciences at  faster a cure can be had.” He’s  the CMTA Board
      toms that had bothered Bruce for  Brooklyn College, but early on  encouraged by STAR’s progress
      most of his life, but discouraged  discovered a knack for business.  in the past several years as he sees
      him from having genetic testing  He started off as a salesman at  “success breeding success.”
      because he couldn’t do anything  Mattel Toys, selling the first wave  Bruce also considers education
      about the results.                        of video games, then   and community services a “criti-
          Unwilling to       Bruce Chizen       joined pre-IPO         cal” part of the CMTA’s mission.
      accept that answer,   calls the CMTA      Microsoft in the mid-  It’s what drew him to the CMTA
      Bruce went to the      “an extremely      eighties as its East   in the first place, and he sees the
      CMTA website for a      focused and       Coast sales manager.   need for a continued strong pres-
      better understanding                      He moved to Califor-   ence in this space.
      of the disease. Today he  effective       nia to work for Claris,   Bruce says he is “semi-retired”
      says that the help the  organization.”    a software subsidiary of  now, though he admits that his
      CMTA provided him                         Apple, then joined     wife might dispute that characteri-
      and the potential of finding a cure  Adobe for 14 years, seven as CEO.  zation. He serves as a senior
      for the next generation made him    Starting out with nothing left  advisor to Permira LLC, a private
      want to assist the organization in  Bruce “very sensitive” to how non-  equity fund, and as a venture part-
      any way possible.               profits use his donations. “I’ve  ner for Voyager Capital, an early
          In the past three years, he’s  seen a lot of waste,” he says. Hap-  stage VC firm. In addition he sits
      done just that. His first donation  pily, he hasn’t seen it at the  on a number of for-profit boards,
      to the CMTA led to a breakfast  CMTA, which he calls “an         including publicly listed Oracle
      meeting with CMTA Board Chair   extremely focused and effective  Corp. and Synopsys Inc. He also
      Gilles Bouchard, his Silicon Valley  organization.” Bruce praised the  continues to advise nonprofit
      neighbor. That quickly led to a  board’s entrepreneurship, and   institutions including KQED,
      role as special advisor to the Board  likens the business-focused STAR  a PBS affiliate, and the Silicon
      of Directors, where he brought his  model to “what a venture capitalist  Valley Education Foundation. h
      extensive business and nonprofit  would do with a startup,” engag-
      experience to the organization’s  ing partners to provide needed
      search for a new CEO.           services and capital.            To have your donation in support of CMT research
          That business experience        “The path to a cure is possible  matched, please visit www.cmtausa.org/wearefamily
      began in Brooklyn, where he was  and probable,” Bruce believes, “so  or mail in the form on p. 23 with your check.

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