Page 27 - 2021 Summer CMTA Report

THE Charcot-marIe-tooth association

CMTA STAR ALLIANCE CMTA LEADERSHIP STAR ADVISORY BOARD
PARTNERS: Amy J. Gray, CEO John Svaren, PhD, SAB Chair
Acceleron Pharma University of Wisconsin
ARQ Genetics BOARD OF DIRECTORS Frank Baas, MD, PhD
University of Amsterdam,
Charles River Gilles Bouchard, Chairman The Netherlands
Genzyme, A Sanofi Company Gary Gasper, Treasurer Robert Burgess, PhD
HumanFirst Therapeutics LLC Herb Beron, Secretary The Jackson Laboratory
Horizon Discovery Dan Chamby Maurizio D’Antonio, PhD
San Raffaele Scientific Institute,
Ionis Pharmaceuticals David Coldiron DIBIT, Milan, Italy
InFlectis BioScience Thomas W. Dubensky, Jr., PhD M. Laura Feltri, MD
University at Buffalo
Laura Fava
The Jackson Laboratory Alan Korowitz Steven Gray, PhD
NCATS (NIH) David Norcom University of Texas
New York Stem Cell Foundation Steve O’Donnell Southwestern Medical Center
Passage Bio Chris Ouellette Scott Harper, PhD
The Ohio State University
PsychoGenics Elizabeth Ouellette School of Medicine
Regency Pharmaceuticals Kevin Sami Kleopas Kleopa, MD
Renovo Neural, Inc. Phyllis Sanders, Esq. Cyprus Institute of Neurology &
Genetics
Steven Scherer, MD, PhD Jun Li, MD, PhD
CMTA CORPORATE Michael Shy, MD Wayne State University
PARTNERS: John Svaren, PhD Rudolph Martini, PhD
Aetrex Worldwide, Inc. Special Advisor to the Board University of Würzburg, Germany
Allard, USA Bruce Chizen Klaus-Armin Nave, PhD
Applied Therapeutics Max Planck Institute for
Experimental Medicine
Balance Walking ADVISORY BOARD University of Göttingen, Germany
Foot Solutions Teresa Carroll, MS, PhD Brian Popko, MD
GeneDx Gregory Carter, MD, MS University of Chicago
Mario Saporta, MD, PhD
Hanger Clinic Ken Cornell, CO University of Miami
Kinetic Research Bob DeRosa Steven S. Scherer, MD, PhD
Katy Eichinger, PT, DPT, NCS
Turbomed Orthotics University of Pennsylvania
Ashraf Elsayegh, MD, FCCP Lawrence Wrabetz, MD
Tim Estilow, OTR/L University at Buffalo
CMTA STAFF Shawna Feely, MS, CGC Stephan Züchner, MD, PhD
Jonah Berger Valery Hanks, OTR/L, C/NDT University of Miami
National Youth Programs Manager Mark Scheideler, PhD, TEB Chair
jonah@cmtausa.org Sarah Kesty HumanFirst Therapeutics LLC
Kim Magee Kate Lair David Herrmann, MD
Director of Finance and Bethany Noelle Meloche University of Rochester
Administration Tom Meloche Tage Honore, PhD
kim@cmtausa.org David Misener, BSc (HK), CPO, MBA Aestus Therapeutics Inc.
Laurel Richardson Elizabeth Misener, PhD, LMSW Christopher Klein, MD
Director of Community Outreach Christine Murray, MD Mayo Clinic, Rochester, Minnesota
laurel@cmtausa.org James Nussbaum, PT, PhD, SCS, EMT Lars J. Knutsen, PhD
Jeana Sweeney Discovery Pharma Consulting LL
Director of Development Sabrina Paganoni, MD, PhD Claes Wahlestedt, MD, PhD
jeana@cmtausa.org Glenn Pfeffer, MD University of Miami
Kenneth Raymond Michael E. Shy, MD, CEB Chair
Clark Semmes University of Iowa
Carly Siskind, MS, CGC Mary Reilly, MD, CEB Co-Chair
National Hospital, London, England
Greg Stilwell, DPM Richard Finkel, MD
David Tannenbaum, LCSW Nemour’s Children’s Hospital,
Amy Warfield, PT, DPT Orlando, Florida
Evan Zeltsar Davide Pareyson, MD
Besta Institute, Milan, Italy
Joshua Burns, PhD
University of Sydney, Australia
Michael McDermott, PhD,
Consultant, University of
Rochester Medical Center

Email the CMTA at info@cmtausa.org

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SUMMER 2021 THE CMTA REPORT