Page 12 - 2021 Winter CMTA Report

Youth Council Member Emmily Stufflet (front row, center) held a fundraiser
and awareness event for CMT at her high school in Florida in 2020.

Youth Council Gearing Up

for Big Fundraising Year

embers of the CMTA’s “Walk a Mile in Our Braces,” a Maya Grochowska, “Attending
Youth Council raised book charting the experiences of Camp Footprint and meeting so
more than $7,000 for 75 youth with CMT and the first- many other kids with CMT
the CMTA in 2020 ever Global Online Dance-a-thon inspired me to be more open
Mand look forward to 4 CMT. about my CMT. And it made me
keeping the momentum going The council has also devel- want to raise money for the
in 2021. oped a “Fundraising E-Kit,” a CMTA. Meeting other kids with
“This is the year we get the presentation filled with informa- CMT drove home that I’m not
whole community of youth tion on the different ways to alone and all of us with CMT
involved because together there fundraise and get involved. The deserve hope for a cure.”
is no stopping us,” the Youth E-kits are downloadable and tai- Hannah Roberts said she
Council’s Fundraising Commit- lored specifically for situations is “inspired to raise money for
tee—Elijah Tolz, Paola Martinez like school fundraisers, Walks 4 the CMTA because of its com-
and Evan Zeltsar—said in a CMT and birthday celebrations. mitment to research and passion
statement. They are available on the CMTA for community. I’m inspired
The three are spread out on website. because of my tribe and the
opposite coasts but share a pas- Two young fundraisers impact for future generations
sion for fundraising to cure CMT shared their motivation for help- living with Charcot-Marie-
and are “determined and ready ing the CMTA. According to Tooth disease.” k
to encourage other youth in the
community to make a difference.”
Plans for 2021 include a vir- FOR MORE INFORMATION on getting involved with the
tual bingo game, publication of CMTA’s Youth Program, go to www.cmtausa.org/youthprogram.

12 THE CMTA REPORT WINTER 2021