Page 15 - 2021 Winter CMTA Report

H O WA R D L A N D I S

no significant symptoms when his genome has been sequenced
he was diagnosed 12 years ago at and if Howard’s culprit gene is
the age of 54. He grew up on a identified researchers will be
small farm in Pennsylvania and able to determine if he had the
wasn’t aware of any CMT symp- disease too. Howard has one sib-
toms in his earlier years ling and one child and so far
although he has a high instep neither shows signs of CMT.
and was prone to ankle sprains. Howard initially viewed the
He went on to work in Manhat- CMTA as a resource for learning
tan as an accountant and more about the disease, then
consultant for a couple of years later began attending
and then spent most Patient/Family Con-
of his career with a Now is the ferences and online
small private equity time to join webinars. He says
firm in Connecticut. the CMTA in that his experiences
He was referred to a supporting the have been uniformly Howard Landis
neurologist by an positive and that he
orthopedist treating research “continues to be organization that is well run, he
him for a shoulder community… amazed at the caliber added, noting that the CMTA has a
injury. The orthope- and dedication of the 4-star rating from Charity Naviga-
dist noticed some wasting in the people that are working to sup- tor—and a clearly defined mission
area between his thumb and port CMT patients and the that has a reasonable chance of
index finger and thought it research community that is succeeding.
might be CMT. A nerve conduc- working hard to find treatments Currently retired and living
tion test confirmed his hunch. and cures for CMT.” in South Florida, Howard closely
Howard thinks his father, Howard says the CMTA fits follows CMT research and lives
who passed away several years into his philosophy of giving, which out his own philosophy of giv-
ago, probably had CMT. He was is whether it makes a difference. ing—making a difference in the
never seen by a neurologist, but Ideally, that means giving to an lives of everyone with CMT. k
!

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