Page 17 - 2021 Winter CMTA Report

Named In 2020

CMTA CENTER OF EXCELLENCE CLINICAL DIRECTOR
Cedars-Sinai Medical Center (Los Angeles)..................................................................................Drs. Matthew Burford and Richard Lewis
Children's Hospital Colorado (Aurora)* ..............................................................................................................................Dr. Michele Yang
Children’s Hospital of Philadelphia (Philadelphia) ...............................................................................................................Dr. Sabrina Yum
Children’s Hospital of Pittsburgh (Pittsburgh)*.........................................................................................................Dr. Hodas Abdel-Hamid
Children’s National Hospital (Washington, DC)*.................................................................................................Dr. Diana Bharucha-Goebel
Connecticut Children’s Medical Center (Farmington)..........................................................................................................Dr. Gyula Acsadi
Hackensack University Medical Center (Hackensack, NJ)*.............................................................................................Dr. Florian Thomas
Hospital for Special Care* (New Britain, CT) ....................................................................................................................Dr. Kevin J. Felice
Johns Hopkins University (Baltimore)...............................................................................................................................Dr. Thomas Lloyd
Kane Hall Barry Neurology (Dallas/Fort Worth)*.............................................................................................................Dr. Sharique Ansari
Lucile Packard Children’s Hospital at Stanford (Palo Alto) ......................................................................Drs. John Day and Ana Tesi Rocha
Massachusetts General Hospital (Boston).................................................................................................................Dr. Reza Seyedsadjadi
Nationwide Children's Hospital (Columbus)* ....................................................................................................................Dr. Zarife Sahenk
Nemours Children’s Hospital (Orlando) ............................................................................................................................Dr. Richard Finkel
Northwestern Memorial Hospital (Chicago)* ...................................................................................................Dr. Daniela Maria Menichella
Ohio State University (Columbus).............................................................................................................................Dr. Samantha LoRusso
Oregon Health & Science University (Portland)* ................................................................................................................Dr. Chafic Karam
Rush University (Chicago)* ........................................................................................................................................Dr. Ryan D. Jacobson
Stanford Neuroscience Health Center (Palo Alto) ....................................................................................................................Dr. John Day
University of California (San Francisco)* ...................................................................................................................................Dr. Alex Fay
University of Colorado (Aurora)* ........................................................................................................................................Dr. Vera Fridman
University of Florida (Gainesville)* ...................................................................................................................................Dr. James Wymer
University of Illinois at Chicago (Chicago)* ................................................................................................................Dr. Charles K. Abrams
University of Iowa (Iowa City) ............................................................................................................................................Dr. Michael Shy
University of Miami (Miami).............................................................................................................................................Dr. Mario Saporta
University of Michigan (Ann Arbor)*..............................................................................................................................Dr. Dustin Nowacek
University of Minnesota (Maple Grove) ................................................................................................................................Dr. David Walk
University of Missouri (Columbia)..........................................................................................................................Dr. Raghav Govindarajan
University of North Carolina (Chapel Hill)*.......................................................................................................................Dr. Rebecca Traub
University of Pennsylvania (Philadelphia) ......................................................................................................................Dr. Steven Scherer
University of Pittsburgh Medical Center (Pittsburgh)*......................................................................................................Dr. Sasha Zivkovic
University of Rochester (Rochester, NY) .......................................................................................................................Dr. David Herrmann
University of Texas Southwestern (Dallas)* ..................................................................................Drs. Susan Iannaccone and Diana Castro
University of Utah (Salt Lake City) .............................................................................................................................Dr. Russell Butterfield
University of Washington (Seattle) ...................................................................................................................................Dr. Michael Weiss
Washington University SOM St. Louis (St. Louis)*...........................................................................................................Dr.Stefanie Geisler
Wayne State University (Detroit)...................................................................................................................................................Dr. Jun Li
*These Centers of Excellence are not part of the INC.
INTERNATIONAL
The Children’s Hospital (Westmead, Australia)...............................................................................................................Dr. Manoj Menezes
The National Hospital for Neurology & Neurosurgery (London, England)...............................................................................Dr. Mary Reilly
C. Besta Neurological Institute (Milan, Italy) .................................................................................................................Dr. Davide Pareyson
University of Antwerp (Edegem, Belgium)......................................................................................................................Dr. Jonathan Baets

CMTA CENTERS OF EXCELLENCE are patient-centric, multidisciplinary CMT clinics where
children, adults and families affected by CMT can be assured of receiving comprehensive
care by a team of CMT experts. The Centers roughly correspond to the 21 international sites
that make up the NIH Inherited Neuropathies Consortium (INC)—a group of academic medical
centers, patient support organizations and clinical research resources sponsored in part by
the CMTA. The centers will become even more important as the CMTA begins clinical trials,
which will depend on how much we know about the “natural history” of CMT—how different
types of CMT progress over time and whether novel medications are slowing the course of
the disease. Much of that information will be supplied by the Centers of Excellence.

CMTA CENTERS OF EXCELLENCE
www.cmtausa.org/coe

WINTER 2021 THE CMTA REPORT 17